OPENHealth Central is being designed by Lybba, a 501(c)3 nonprofit based in Los Angeles that designs networks, tools, and events that help people better care for themselves and one another. We design networks of patients, physicians, and researchers in collaborations that create breakthrough solutions. Over the past three years Lybba is a founding designer of the Collaborative Chronic Care Network (C3N), a new model for devising and testing innovations in clinical care and research. We are designing tools that help patients track their health between appointments, visualize their health over time via clear and engaging graphics, communicate with physicians using online and mobile applications, and choose to share their medical data with other patients and researchers. By increasing patient engagement, the C3N can transform the experience and outcomes of illness, and accelerate the discovery and application of new knowledge. (Supported by the National Institutes of Health.) Lybba is currently designing and building an automated decision-support aid for doctors and patients to use together to achieve better outcomes. By using this software product, patients with serious chronic illnesses will arrive at decisions about the treatment options most suitable to their particular situation. (Supported by a major L.A. research medical center.) Lybba designed a Genetic Care Interchange that networks the collective experience of patients, researchers, and physicians, along with genetic information, to supply insight for creating new genetically defined targets for drug development. (Supported by southern California life-sciences company.) Lybba designed a knowledge base of medical diagnostics, including knowledge-sharing models for how potential contributors--such as MDs, patients, organizations, and others--will participate in the creation and cultivation of an online knowledge base of medical diagnostic information and techniques. (Supported by The California Endowment.) Lybba is a co-designer of the Regional Resource Network of quality improvement leaders throughout the country. With the Institute for Healthcare Improvement, we are devising prototypes that will make it easier for people to develop, curate, and spread knowledge. (Supported by the Robert Wood Johnson Foundation.) Lybba conceived of and created an immersive DIY bio-design event for high school science classrooms in partnership with The California Endowment and their Building Healthy Community initiative in South L.A. Biohackathon L.A. 2013 focused on career opportunities in the life sciences and the cross-application of biotech knowledge. (Supported by the California Biotechnology Foundation.) In addition to the programs above, Lybba has designed, constructed, and created content strategy for a dozen healthcare websites. Lybba has also produced two dozen films on science and healthcare with our film-making partner, Wondros.
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- 2013 Grants Challenge
Placing patients at the center of care: OPENHealth Central Obamacare is increasing the number of people with access to health insurance in Los Angeles, but that won’t automatically translate into better care. LA's healthcare systems serve more people than anywhere else. However, given the geographic, economic, and social disparities in the county, meeting the needs of the newly insured is a huge challenge. Making matters more difficult, no software service exists that is designed specially to assist primary-care teams in managing their most complex cases. Fortunately, these challenges offer an opportunity to create an innovative system and forge new partnerships that can improve care for everyone in Los Angeles and serve as an example for the entire country. Taking advantage of this opportunity will be easier with the open-source software service that we call OPENHealth Central, whose purpose is to put the 'care' back into the healthcare system. OPENHealth Central helps doctors and patients plan for visits more effectively, track experiences between visits, boost the quality of care and self-care, and provide the psychological support that comes from a rich human feedback loop. The system does this by triggering action on the part of doctors, while collecting data that drives evidence-based improvement in patient care, population health, and healthcare costs. OPENHealth Central provides patients with effective ways to organize and use their healthcare information in order to be more active participants in their own care. Beyond helping people make and prepare for medical appointments, keep track of prescriptions, and decode lab results, OPENHealth Central also encourages people to set and reach health goals through tailored care plans that offer both medical and lifestyle suggestions. Engaged patients make healthier choices, which means a healthier population—and reduced healthcare costs—overall. LA's healthcare challenges require a systematic response The newly insured have significant health needs and social circumstances that make it difficult for them to take full advantage of healthcare services. Meanwhile, this population is often treated at clinics that are already tending to those living in under-served communities where caseloads are high, funding is minimal, and compensation is restricted to face-to-face services only. A shortage of primary-care doctors in these communities already makes it more difficult to help people achieve optimal health. Fortunately, physician-led inter-disciplinary "care team" models are emerging to address this shortage while improving care. And yet there is no integrated software service that will help with this transition to a more efficient and effective care model. Placing patient needs at the center of healthcare Los Angeles can bridge the gap between insurance reform and healthcare reform in a systematic and innovative fashion by supporting OPENHealth Central, a web- and mobile-based system that helps clinical care teams better manage the health needs of patients with complex and costly chronic illnesses. When operational, OPENHealth Central will help clinical care teams: • screen, assess, and coordinate the care of patients whose complex health problems and social situations pose barriers to timely and economical care • communicate with and monitor the health of patients remotely, in order to improve data quality while saving on time and expense associated with face-to-face clinical encounters • support individualized preventive/chronic/acute wellness planning to keep people out of the hospital whenever possible • develop a primary care model of continuous personal relationships that are data-driven and accountable; doing so will help ensure that clinical quality data can be more easily shared within medical practices and across hospitals and clinics, to improve the overall quality of care of Angelenos • increase patient access to healthcare and community assistance programs, facilitating 'warm hand-offs' to people in agencies who can help the patient with their health-related needs OPENHealth Central will help Angelenos and their care-providers lead more healthy and satisfying lives regardless of their social advantages.